ReferIndia News Huntington’s Disease Society of India calls for urgent government action for inclusion under National Rare Diseases Policy

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Huntington’s Disease Society of India calls for urgent government action for inclusion under National Rare Diseases Policy

Published on: Aug. 24, 2025, 12:22 a.m. | Source: The Hindu

Demanding that the Union Health Ministry and ICMR recognise Huntington’s disease (HD) as a rare disease in a policy amendment of the National Policy for Rare Diseases (NPRD), HD patients, their caregivers, and doctors on Saturday came together at the second HDSI international conference at NIMHANS in Bengaluru.

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